Not Winning

I've been trying to return the focus of this blog back to art, mostly my own, but I've been meaning to throw out a cancer update as I haven't had one in a while.

There isn't anything new to report, just some remaining issues to deal with. Some have gotten better, some worse. It's hard to say whether the saliva issue is getting better or not. It's been six months since my last radiation treatment and I have to say that I don't know that I'm all that much further than I was last August. There is some difference in that I can swallow certain foods that I wasn't able to then, chicken and certain other meats in particular. Breads are still pretty much a no-go unless I have a full glass of whatever to help it down. The lack of saliva simply makes it impossible for me to swallow such dry fair. I can swallow it part way but once it hits the back of my tongue, it sticks there, holding on for dear life and sometimes even milk or water won't force it down and I have to choke it up or choke on it. Makes for great dinner company.

The main reason I'm not sure there's been much progress, even though I can eat things I couldn't before, is how dry my mouth gets at night. This hasn't changed much since August. I wake up 5 or 6 times to get something to drink or simply rinse my mouth, as my lips tend to get stuck to my teeth and my tongue to the roof of my mouth. I used to keep a small bottle of Biotene next to the bed but that stuff is useless. Water works just as well, which is really only for about an hour. Then it's back to not being able to open my mouth. On the plus side, I'm fairly certain the surgery cured my sleep apnea.

And then there's my shoulder. This is part of the whole neck and chest muscle thing. The surgeon took my right pec muscle and used it to fill in the gaping hole in my neck after surgery. The muscle still works, but being a chest muscle doesn't much help in your neck. It needs to not work. Any flex of my chest muscle and I get an unpleasant "tug" in my throat and mouth, where my tongue attaches to the base of my mouth. The muscle was reattached at the underside of my jaw and any use of that muscle pulls on the jaw and tissue there, feeling like it's going to tear every time I do something like roll over in bed. Anything that uses that pec muscle. A push-up would be a bit traumatic.

But back to the shoulder. The chest and throat issues I've kinda learned to live with. Therapy doesn't seem to fix things so much as alleviate the tightness for a while. The problem with my shoulder can be helped by therapy, but I'm not sure how much, really. When they took the muscle from my chest, they only cut one anchor point, at the shoulder, and simply pivoted it around and reattached that anchor point to my chin. In addition to doing all the chest flexing, this muscle also helped keep my shoulder in place, helped keep the joint attached. Now any extreme movements of my shoulder, like scratching my ass or sleeping on my right side, make it feel like my shoulder has dislocated, which is a real possibility.


And then we get to the other issues. The ones that have nothing to do with cancer. My roommate, Kevin, was basically killed by a drunk driver in 2007. He died on the street and was revived in the chopper. Crushed skull, lacerated liver, broken bones now with metal in them, brain trauma. He should have been on disability since then, but since his wife was a waste of skin like mine, she didn't do much of anything to help him and the other people in his life didn't do much either, apparently. Anyway, long story short, he had a seizure the other day. Woke up on the floor with blood in his mouth. Went to the emergency room and got x-rays and a cat scan and yup, seizure.

So now, doctor's orders, he can't drive, can't work and needs to get the disability he should have been on since '07. Except that it takes about nine months to get approved for disability. And how is he supposed to live between now and then? Food? Rent? Bills? With no job and no car and no ability to work? Seeing as Arizona has no financial assistance for adults... No answer to that other than - I have to find more work than I already have but somehow make sure my part-time crap job is crappy enough to not make more than $900 a month or I lose my health insurance and can't get it back. As a friend said to me today, that's literally life and death for me.

So yeah, not winning.

Awesome

So, after a month of "Yes, you have the job", "Yes, very soon you can start working", to, "Wow, awesome! You got the City of Phoenix account for us!" to finally, "Ok, we have your truck. C'mon in!", to "Sorry, there isn't enough work. See ya", and that great job my roommate had is gone as fast as it appeared.

So no, no work. No money coming in, again. Thanks again, Phoenix. You suck.

Careful Where You Put Your Feet

I wouldn't call it viral, but the 99% pic I sent to Faces of the 99% has gotten quite a few hits. It's a little intimidating but kinda cool the way it's spread outward. This being the internet, there are trolls at every turn, waiting to crap on whatever it is they disagree with. The sick thing is they're trolling people who are, for the most part, speaking out in serious pain and fear, and these a-holes are trolling them, telling people afraid of homelessness and death, that 'if they just had a job, they'd be doing better', and worse. It's really disgusting.

I've had this sense that most of these types of people, aside from whatever political views they hold, seem to be unable to think beyond two levels deep. The whole 'consequences of your actions' thing.

I had an argument with a friend a while ago about health insurance. This was when we both had good  jobs and good insurance. His argument was the same one you always hear. The same one an old high school friend trolled one of my Facebook posts.

"I'm tired of paying for something I don't use and will never need."

This is actually what she said.

There's so much wrong with this statement it's kinda sad and infuriating. Both people were saying this as it refers to welfare and taxes. Basically, they're tired of paying taxes that help others, not themselves. When pressed further, the more honest of these cynics will say they're tired of paying taxes for lazy people who are just taking advantage of the system. Some will go even further and parrot the old "I'm tired of giving away my hard-earned money so some lazy fat woman can sit in her house and pump out welfare babies".

I've heard the same argument from people who are sick of paying taxes for public schools because they don't have kids and never will.

These sentiments are perfectly fine and good. You want to believe this is what happens, fine. There's no person on the planet that's going to convince you otherwise. The problem is, when they actually do lose your job or you or a family member comes down with a catastrophic illness, all that foresight and brilliance that got you from there to here isn't going to help you, and my taxes will then be paying to save your necks.

The main issue I have; if you're unwilling to help your fellow American when they need it most, how can you call yourself an American? Why is it that you can't see that thing I keep hearing people like you quote: "There but for the grace of God..." Is it that you think you have God's grace and therefore nothing bad will ever happen to you? Like Job? Mysterious ways and all.

Here's another one: you are amazing, yes, it's true. You got where you are, all by yourself, because you're a smart, hard-working individual. Fine. What about your adult daughter? Your sister? Your father? Did all your foresight and hard work protect them from car accidents, cancer, crime, Alzheimer's, tornadoes? Will your health insurance pay for your non-dependent son's cancer treatments? No, it won't. Do you have enough saved or enough equity in your home to pay for his treatments? No, not unless you're in the 1%. Are you going to let your son die? No, your son is going to NEED welfare.

Or should I assume that you believe your shining example will ensure that your son or daughter or sister or father never loses a job or gets dropped by an insurance company or gets denied due to pre-existing condition?