Tuesday, October 15, 2013

Doctor Follow-up

The biopsy confirmed. Dermatomyositis.

The doctor was not impressed with my lack of improvement. He wants to start on immunoglobulin IV treatments in 2 weeks. Upped my med dosages in the meantime. Insurance is an issue of course... Expensive stuff.

I need to either get Cobra at $510.00 a month or hope Access comes through. The treatments are supposed to start in 2 weeks. Two treatments a month for like, a year or some junk. $10,000 a pop, apparently.

  • Intravenous immunoglobulin (IVIG). IVIG is a purified blood product that contains healthy antibodies from thousands of blood donors. The healthy antibodies in IVIG can block the damaging antibodies that attack muscle and skin in dermatomyositis. This treatment is given as an infusion through a vein. The effects of IVIG are beneficial but don't last very long. Repeat infusions every six to eight weeks are often necessary.

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